Over on my main site – I recently reviewed Justice for LB by Sara Ryan. It is one of those books that makes the reader angry at the state of the world.
Death by indifference has long been chronicled by organisations such as Mencap; there is not doubt that throughout history many people with disabilities – particularly learning disabilities – have died because the services tasked with caring for them did not.
Parents have written on blogs and social media frequently of the intense difficulty of knowing what their child is thinking or feeling, of how their child cannot tell them when they’re in pain or when something just doesn’t feel right. So imagine just what happens when those parents aren’t there anymore – separated by distance, circumstance or mortality – what happens to their sons and daughters then? The reality is far too many succumb to medical conditions which could have been prevented or are killed indirectly or directly by the very institutes and services which claimed to be there to help them.
Connor Sparrowhawk’s story is sadly not a new one and – for all the optimism that his family’s strength and group support will make a difference – it likely also won’t be the last of it’s kind. Far too often, people let the devastation and heartbreak from cases like this slip away from public consciousness. This cannot just be blamed on the non-autistic community either – whilst Connor’s family and the group of people who have banded around them have taken Twitter by storm, forcing people to acknowledge one of the most important events in the last four years in the autistic community… It’s merely a drop.
Looking at other autism communities that exist such as Wrong Planet or on other social media such as Reddit or Tumblr – JusticeforLB and Connor Sparrowhawk are rarely (if ever) mentioned. Neither terms show up in searches throughout the website or the direct tweets of two of the biggest Autistic Self Advocacy groups – Autistic Self Advocacy Network and Autism Women’s Network.
Why is this?
Why has Connor’s story been lost to the autistic community? Why aren’t they angrier about it, demanding justice alongside his family and the people supporting them? These are communities that exploded during the controversy around fidget spinners for god’s sake, yet on one of the most important events to unfold within the autism community in years – they are silent.
And to answer my own question, I really don’t know why.